Sunday, April 7, 2019

Our Camp Year Begins With Pat's Story

United Stroke Alliance in partnership with Medtronic launched a new resource for Stroke Support Groups called The Booster Box. Included in the box is everything a leader needs to conduct a support group meeting for up to 24 attendees.

To receive your free Booster Box please call our office at 
309-688-5450 or email to request yours. 

Subscriptions will be available for purchase and information will be inside your free box.  

Show Me The Booster Box
Pat's Story was originally posted on this blog in 2011. Since we are starting up our camps soon for the 2019 season, I thought this might be of interest to those of you who have been thinking of but have not yet attended one. Pat and Tony have been volunteers at many of our camps throughout the years until Pat had her stroke and then they took on the tasks of caregiver and survivor. They continued to serve on our board for several years after Pat's stroke until their life's demands needed priority. They still help today with one of our local fund raisers. Thank you Pat and Tony for your support.

Our camps, attended by upwards of 60 people, are staffed by our professionals, local volunteers and volunteers from the hospitals in your area. A nurse is always on-site. We provide a safe, handicapped accessible, motel/hotel style, camp ground environment with catered food. We provide crafts, seminars, skits, drum circles, and activities all geared for both the stroke survivor and their caregiver.

Every year we have a different theme. Last year it was country/western and the year before the 80's. This year it will be a different theme but you'll have to sign up to find out what it is, or wait til next year, because we like to surprise our campers.

If you are interested click on either web site at the top to find out more about us and to get our phone number. Ask us about a camp in your area. Chances are there is one nearby.

  Told by her husband Tony

            Saturday, Oct.20, 2001 started off as a beautiful autumn day, but ended up being the worst day in our lives. After going out to breakfast, a usual Saturday custom, we came home and I started to replace the window in our family room. Pat was sitting on the couch, drinking her coffee, watching me so she could help if needed. Just after I removed the old window, I saw her get up and stumble and then fall down (never spilling her coffee). I thought that she just lost her balance until I went over to help her get up, then I realized that something bad was occurring. She could not move her right arm and was having trouble speaking. Our daughter, Jenni (an Occupational Therapist at OSF) was on her way over to visit, so I called her on her cell-phone and told her what happened. She was sure that Pat was having a stroke and told me to call 911 right away, which I did. The Rescue Squad was there within minutes along with one of our daughters’ friends, who Jenni called and was a nurse that lived close-by. We were at OSF with-in one hour of Pat having the stroke and Jenni thought that things would not be too bad, because of getting there in time to receive TPA. The only problem was that Pats’ stroke was due to a hemorrhage in her brain, not a clot. The Doctors kept calling it a “big bleed”, which turned out being as bad as it sounded! The other problem was that it was too deep in her brain to perform any type of surgery on, without destroying more of her brain, so we just had to wait for the bleeding to stop or for Pat to die. They couldn’t tell us what to expect, but did suggest that we all say good-by to Pat, in case she didn’t survive and the Priest gave her “Last Rites”. Pat did survive!!

            After seven grueling weeks in the hospital Pat came home in a wheelchair and not being able to talk. Then we started outpatient therapy, OT, PT, and Speech. Pat had a very good attitude, which was the most important thing and really worked hard to improve; she can now walk with a cane and usually communicate what she wants by various means (some speech, actions, spelling, and expressions). We really feel fortunate, compared to other survivors’ stories about losing friends and even family after their strokes. We never lost friends; we even made new friends, thanks to our Support Group and Stroke Camp!  Another good that has happened is that Pat always wanted grandkids and now has five with one more coming to keep her busy. Pat really enjoys going to Camp, going on vacation, playing in three card clubs, going to Wednesday morning coffee and many other social events. Life is truly what you make of it!

            I mentioned Stroke Camp a few times; this was started in 2004 by a member of our Stroke Support Group as a weekend get-a-way at a local Camp/Retreat Center. We had one camp the first year, then two the following year, and, after word got out about the Camp, four the next year with Stroke Survivors and Caregivers from seven States attending. After seeing how much impact the Camp had on Survivors, the Director decided to go Nationwide with the Camps. Pat and I were > on the Board of Directors and <volunteered> to work at the Camps . This year <2011> there are eighteen Camps scheduled in various States. We will be volunteering in Colorado and Texas and maybe Springfield, IL. These camps are all funded by local Hospitals or Fundraisers and donations. I urge anyone who has a loved one or friend that has suffered a Stroke to tell them about Camp. You can find out more information about Camp at our website:

(Editor's Note: over the years, since 2004, we have grown tremendously developing and hosting over 30 camps a year throughout the nation, coast-to-coast, border-to-border. We foresee this trend continuing. Words enclosed in < > brackets are made by me to keep the article current.)

1 comment:

Paul Dietz said...

My wife (the caregiver) and I have been to 3 camps her in Nebraska since my stroke. I can honestly say that they are the best planned and managed of any organization I can relate to. We look forward to attending each year now and they have been one of our highlights each year. In the world of lodging where 5 stars is the best, this experience is a "6" star. The staff and volunteers are super and make you feel like royalty. The laughter is contagious and we hate to see the weekends end. WE know it takes a lot of work on your side to provide these camps, but to see someone start the camp with a 'sour' face and end with a smiling face and laughing, believe me, you are doing a lot of good. Thanks for all you guys do. Linda, Paul Dietz, Lincoln, Ne.