Sunday, November 29, 2020

It's Time to Celebrate


www.strokecamp.org



http://www.unitedstrokealliance.org/



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The following is an article originally posted on the now discontinued website called StrokeNet. They published a monthly newsletter. Their articles are still very useful today. With the permission of their then editor, Lin Wisman, I am able to repost them on my site. 

Claudia Warner, the author of this article, was a member of the StrokeNet staff.
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It’s Time to Celebrate
By Claudia R Warner

The Holiday Month is here and it is time for celebrations—family, food, gifts, etc.

We are really celebrating as Wes has his last two sessions of Physical Therapy this month! It has gone very well, he has worked very hard and so has his therapist. The result is that Wes is moving better than before his surgery and is in full steam. His walking endurance is much better, too. That will be a plus when we go shopping and he wants to get out of the chair.

It appears that we’ll have a White Christmas---we had a very White Thanksgiving and the stuff just won’t go away! The merchants seem happy as the snow has put people in a shopping mood a little early this year.

I haven’t done much shopping, yet, but am getting ideas for Wes’ gifts. It is hard to think of things that are useful, make his life a little easier, and that he will enjoy. He doesn’t give many clues as to what he’d like, so I’ll just fumble along…..

If any of you are in the same boat, there are a few items I can suggest as gifts for the one you care for.

1 Touch lamps

These are so-o-o handy on nightstands and end tables. No fumbling for switches or buttons to press—a light touch turns on the light. Warning—dogs love to turn these on! Numerous times I’ve found lamps lit during the day and our furry friends seem to be the culprits!

2 Automatic Hand Soap Dispensers

We have these in all bathrooms and the kitchen. They are great-one just puts their hand under the spout and just the right amount of soap comes out.

3 Touch Faucets.

These are expensive and I wish we had one. It would be so easy for Wes to use.

4 Quad Bases for Canes

For those who have a collection of canes or walking sticks, these would be a welcome gift. All you have to do is push the base on the tip of the cane and the cane now will stand by itself!

5 Talking Wrist-Watch

These are so handy for anyone who has a problem reading a clock. The dial is large, lights for night use, and at the push of a button it tells the date, year and time.

6 Photo Phones.

These have places for small photos of people your “charge” might call. You program phone numbers to correspond with the photos. Lift the receiver, press the photo and the call is placed!

7 Gift Certificates

Ah, the perfect gift for anyone. They can be used in stores or on-line. AND, there are so many varieties that no matter what one’s interest, there is a card that will “fit”. Wes’ favorites are ones for bookstores and coffee shops.

8 Portable DVD Player

These actually are reasonably priced! I plan to get one for Wes that has a 9” screen and a long lasting rechargeable battery. He enjoys DVD’s from Great Courses, as well as movies. This is something he can operate by himself, thus adding to his feeling of independence.

9 Food

This is a favorite gift—homemade goodies, or purchased treats. How about giving a basket of fruit? You can fix your own, or order one from a supplier. All you need is holiday wrap, bows and a nice container. Fill it with fruit from your favorite grocery store and you have a nice gift. Plus one that is healthy!

Happy Gifting! And Happy Holidays to all of you from the Warner Abode.

We make a living by what we get but we make a life by what we give.
Winston Churchill


Thursday, November 26, 2020

Street & Steeple by Phil Bell

 

www.strokecamp.org



http://www.unitedstrokealliance.org/



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Phil Bell is a retired pastor, University Baptist Church, and a stroke
survivor. He continues to write his Street & Steeple articles for
his local newspaper. I believe this is good therapy for him, and
reading his work may be good therapy for you, too.
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Street & Steeple for November 27 th , 2020

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“Time To Come Together”
By Phil Bell, retired, pastor, University Baptist Church

Are you like me? Yesterday, was one of the things for which you were thankful was that this year’s presidential election is finally over? Each of us can now do one of three things, be bitter & yell “foul,” be smug & self righteous, or unite behind our elected leader! I urge us to do the last! I am, as I’m sure you are, either happy, disappointed, or even angry at the outcome, but that’s not what’s important now. Our country’s future is too important to not do our very best to help ensure it’s a bright one. “Just how do I do that?” you may ask. One way, I suggest, is by accepting the outcome, graciously & not complaining nor gloating about it to each other nor by way of social media and, more importantly, by praying for President elect Biden both before and, especially, after his inauguration. Most certainly he will need the Lord’s help as he inherits a deeply divided Congress, not to mention, a deeply divided country! Some, no doubt, will have trouble doing that, but both the nation’s welfare and the Bible require it! The Scriptures clearly assert that this world’s leaders are in place at the will of God and we are to support them, knowing that. We all should thank God that we live in a country whose leaders are chosen by ballots, not bullets! Let us honor that God given privilege by being appreciative,
demonstrated by our support of the process. In the Christian world, as well as the political, too often we are divided. Thankfully, here in Macomb there exists MACMA (Macomb Area Christian Ministerial
Association). This very column is graciously provided each Friday by the “McDonough County Voice” to that association. I am, personally, very grateful to the pastor members of MACMA for graciously encouraging my participation with them even though I don’t have an active pastorate. In our Macomb area there are very many churches belonging to several denominations, with no less than six Baptist churches alone! Too often we, unintentionally, view ourselves in competition with each other rather than united as the one catholic church! That should not be so! Even Jesus’ disciples had that problem, also. In the ninth chapter of Mark we read about them coming to Jesus saying they had found someone casting out demons in His name and they had tried to prevent him because he wasn’t following them. In verse 39 Jesus tells them not to hinder him because “whoever is not against us is for us.” There are valid reasons for many churches and denominations, such as doctrinal differences, as well as, different preferences for the frequency and style of worship. Any time we hear of a church struggling or in some
kind of trouble, all other local churches ought to be sorrowful and praying for their brothers and sisters in Christ, just as all our churches should rejoice when we see another church growing and winning people for the Lord! Way too often we are jealous of another church’s growth. MACMA exists for just those reasons of mutual support and mutual rejoicing. I think it’s time to listen to the advice of those giants of philosophy, the Beatles, as expressed in their song “Come Together.” Written by John Lennon for a California gubernatorial race. Its lyrics include “Come together, come together, come together over me.” I believe it’s right in two respects, we should come together and do so because of something
or someone. Nationwide we should do it for the cause of our country and in our churches for the cause of Christ! There are many examples of groups which should work together, but are instead competitive. I even encountered one when, after my stroke, I had to enter a nursing and rehabilitation facility. The CNAs were excellent, as were the therapists. My therapies would be scheduled throughout the day and the times posted in my room the night before. Because I wasn’t ambulatory the CNAs were supposed to take me, in my wheelchair, to the therapy room at my appointed times. Their primary responsibility was my rest and health, so, sometimes they were sometimes reluctant or tardy taking me. The therapists’ responsibilities were my recovery of the physical abilities I’d lost due to the stroke, thus, they wanted to work with me for the full time of my appointment and sometimes came to my room to get me!! These two groups both wanted to advance my recovery, but were so intent on their own part in it they almost became competitors. Fortunately for me they came together and did wonders for preparing me to be able to return home! The Beatles sang another hit, capturing where we are as a people, “We Can Work It Out,” urging, “Life is very short and there’s no time for fussing and fighting my friend. Try to see it my way. Only time will tell if I am right or I am wrong, while you see it your way. We can work it out. We can work it out and get it straight. We can work it out!” If we would all try to do that with those with whom we disagree, our churches, community, and country would be so much better! Let me reference a couple more pop & rock songs. One is the Brotherhood Of Man’s “United We Stand Divided We Fall.” As it says, “When our backs are against the wall we’ll be together.” The other is Dave Mason’s “We Just Disagree.” The lyrics include, “There’s no good guys, there’s no bad guys, there’s only you and me and we just disagree.” There are certainly honest differences in our points of view in this country. That is not wrong. In fact, friendly, honest disagreements are good for a democracy! We must remember that disagreeing doesn’t make one of us good and the other bad! I believe, of course, nothing is more important than spreading the Gospel, the work about which we all are all to be! As a country, our backs are indeed against a wall and it is time to come together!

- Phil Bell, retired, pastor, University Baptist Church

Sunday, November 22, 2020

50 Ways for Family Caregivers to Take a Break

 


www.strokecamp.org



http://www.unitedstrokealliance.org/


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The following is an article originally posted on https://www.mycaringplan.com. This web site was founded by Daniel Morris. His site addresses issues focused on senior living and home care for them, however, there are some articles on his site that can be useful for caregivers of stroke survivors also. This week's article by Brandy Wells does a good job of listing ideas a caregiver can use to refresh themselves. They may not all work for a stroke survivor's caregiver but many of them could prove useful. There are many links included in this post. I have checked them all and they have a wealth if information for caregivers.
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BRANDY WELLS

50 Ways for Family Caregivers to Take a Break
by Brandy Wells

September 8, 2020
Caregiving

As a family caregiver, you may feel it is nearly impossible to take a break. This role often involves an around-the-clock commitment to your loved one, so you may feel you need to be available at all times. However, as a caregiver, it is crucial that you find time to take small breaks. According to research, personalized, short breaks can lead to positive improvements in caregivers’ health and wellbeing. It can even improve your relationship with the loved one in your care. On the other hand, not taking breaks can result in burnout, mental and physical health issues, sleep disturbances, and more.

Fortunately, whether you need a few minutes, a day, or even longer, there are solutions to help you get the breaks you need. Below, you will discover a list of 50 ways for family caregivers to take a break. These include quick activities at home and more extended options, all with the goal of tending to your wellbeing. Compile your favorites into a personalized caregiver toolkit and use them as often as you’d like. 

1. Practice deep breathing

A 2016 study showed that deep breathing relaxation practices lowered strain and systolic blood pressure for dementia caregivers. So, find a video online or attend a workshop to learn how to practice deep breathing, and introduce it throughout your day.

2. Take a hydration break

Caregiving is a physically demanding job. Drinking more water can improve your physical health and provide a quick break as well. Prepare yourself a water bottle, maybe with a wedge of lemon, to carry with you throughout the day. It will act as a reminder to take a short break, breathe, and rehydrate.

3. Take a break with music

Studies suggest dancing can improve emotional wellbeing, coping strategies, and self-esteem. So, turn on your favorite song and dance for a short, energizing break.

4. Try adult day services

For a longer break, you can try adult day services. Search for options in your area to bring your loved one to a facility, or invite a caregiving professional into your home for the day.

5. Choose a task and ask for help

Asking for help may feel difficult, but the act helps caregivers avoid isolation and strengthen their sense of community. If extended support is unavailable to you, try asking a friend or family member for help with one task, like preparing meals or doing laundry.

6. Take a short stroll

If you are able, taking a short stroll can have numerous benefits for a caregiver. Physical activity can help you prevent illness and boost your mental wellness. Plus, a nice change of scenery will do wonders for your mood.

7. Make a list

As a caregiver, you may feel there are millions of thoughts constantly running through your mind. Pause to get it all on paper, making lists for both you and your loved one. This will help free up mental space to focus on the tasks at hand.

8. Make your favorite hot beverage

A nice coffee, tea, or apple cider provides a cozy moment of respite with each sip. If you don’t have much time for a break, try savoring a few sips of your favorite drink to gain a sense of calm.

9. Call a loved one

Caregivers often report feeling socially isolated. You may miss friends or family, and they surely miss you too. Social support is proven to improve physical and mental health and helps us build resilience, so plan a call and enjoy a nice break catching up with a loved one.

10. Do a short exercise

These days, exercise doesn’t have to mean leaving the house, and it doesn’t have to take much time. Try an online fitness instructor, like walking at home with Leslie Sansone, and build a quick, rejuvenating break into your day.

11. Check for community resources

A 2013 study suggested 85 percent of caregivers felt a lack of community resources. Of course, these will depend on where you live, but churches and community centers are good places to start. Check your local networks to find volunteers or other forms of caregiver relief in your community.

12. Try Meals on Wheels

Meals on Wheels is a non-profit that helps seniors age with dignity by delivering meals across the country. This can help you build in a break by freeing up the time you’d normally spend preparing meals. Head to their website and search for programs near you.

13. Take a time out

Time outs are typically for children, but why not use this strategy for yourself? When you notice you are more irritable or frustrated than normal, put yourself in “time out” for a few minutes to regain composure.

14. Try respite care

Respite care is a service that offers a short-term break for family caregivers. This can happen at home, in a daycare facility, or in a residential center that permits overnight stays.

15. Work with a caregiver coop

Caregiver Cooperatives work with caregivers across the country to provide in-home care services. Find one in your area and learn the ways they can offer relief. 

16. Take a nap

Studies show that over half of family caregivers experience sleep disturbances. Sleep issues and sleep deprivation significantly impact your physical and mental health, so try to nap or rest when your loved one takes some quiet time. 

17. Stretch

Daily stretching can help you keep muscle tension at bay. Plus, it offers a nice pause for both the body and the mind. Take a ten-minute stretching break as an act of kindness for yourself.

18. Prioritize your mental health

Many caregivers experience depression, anxiety, or grief along with their role. If you don’t have time to seek professional mental health services, you can take a quick break to talk to a therapist online through an app like Talkspace.

19. Keep a gratitude journal

Gratitude journaling is the act of writing down things you are grateful for in a notebook. Taking a quick break to jot these items down has been shown to improve sleep and lower stress in regular gratitude practitioners. 

20. Watch a funny video

They say laughter is the best medicine, and it’s true. So, try taking a few minutes to laugh at a funny video to reduce stress, and promote muscle relaxation. 

21. Check if Medicare can help

Medicare offers resources to those that receive their coverage. So, take a look at their website to explore the caregiver aid they have available. 

22. Find a companion

Companions are volunteers who can visit and develop a relationship with your loved one. This offers an important opportunity to socialize and frees you up to take a much-needed break. 

23. Check for financial support

The US government website offers resources for family caregivers. Take a look at their support offerings and discover new ways that you can take a break. 

24. Look into help for specific circumstances like Veteran aid

If your loved one is a Veteran, they have special support resources available to them. Check the website for the US Department of Veteran Affairs to learn how these resources can offer you some relief. 

25. Look into non-profits that offer services

Non-profits like Youth Care offer free in-home activities that your loved one can enjoy. This non-profit in Los Angeles brings trained undergraduate and graduate students into the home to engage in stimulating activities. Search for services like this in your area to get some downtime at home.

26. Invite younger family members for a visit

Younger family members can also provide relief. Invite them over to visit with your loved one while you take a bit of time for yourself.

27. Bring a knitting project

Taking time to do an activity with your hands can lower physical tension and help you calm down. Try knitting or another simple craft as a way to take a break when you can’t get away.

28. Online courses

Nowadays, anything you want to learn is available online, often at an affordable price. So, try language learning apps like Duolingo or websites like Udemy to spend a bit of time learning each day.

29. Take a break with a pet

Being around pets or therapy animals can relieve stress and feelings of social isolation as it increases levels of oxytocin in your brain. So, try bringing a calm pet with you to your caregiving location or visit a neighbor’s pet for a few minutes of cheer.

30. Ask teenage neighbors to help with yard work or chores

Luckily, teenagers often love doing chores for a bit of spending money. Ask teenage neighbors or family members if they’d like to help you with yard work or other tasks. 

31. Take a break to have a favorite shake

32. Try a guided meditation 

33. Watch your favorite show

34. Have groceries and other essentials delivered

35. Ask a neighbor to visit for tea

36. Pay a professional caregiver for one hour

37. Add breaks into your daily schedule

38. Try an at-home facial

39. Try aromatherapy

40. Pick up a childhood hobby

41. Try a self-massage

42. Try yoga or tai chi

43. Sit in the sun for five minutes

44. Listen to a podcast or audiobook

45. Practice mindful eating

46. Plan a fun way to unwind later

47. Prop your feet up for a few minutes

48. Write a letter to an old friend

49. Order delivery food

50. Make a list of the ways to take a break that works best for you
Final thoughts

To sum up, caregiving is a mentally and physically strenuous role, and it may feel like you’re never off the clock. However, there are resources to help, and at-home strategies to help you get a bit more time for yourself. Everyone’s methods will be unique to their situation and needs, but getting more breaks is possible. In short, you should take some time to develop your caregiver tool kit and give yourself some much-deserved relief.

Sunday, November 15, 2020

Eleven Year Journey to Acceptance

  

www.strokecamp.org



http://www.unitedstrokealliance.org/



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The following is an article originally posted on the now discontinued website called StrokeNet. They published a monthly newsletter. Their articles are still very useful today. With the permission of their then editor, Lin Wisman, I am able to repost them on my site. 

Jim Sinclair, the author of this article, was a member of the StrokeNet staff.
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Eleven Year Journey to Acceptance
By Jim Sinclair


As I am approaching the eleventh anniversary of my strokes later this month, it seems like a good time to take stock of my present stroke circumstances. I have always felt that in my particular situation dealing with the physical effects was a lot less formidable task than dealing with the mental aspects of the strokes. My first awareness that I had experienced strokes came when I realized that my left arm and hand had changed into what I thought was lead.

Although I could not move that arm or hand, it was not long before the little finger on that hand started to twitch. Somehow that twitch came with a confidence that if something has even the smallest ability of movement, efforts can be undertaken to enhance that ability to a far more advanced level of functioning. First it was that twitch and then very, very gradually there was movement in each of the fingers of that hand, which was slowly followed by movement of my left arm.

Hundreds of hours of physiotherapy and occupational therapy resulted in strengthening that hand and arm into fully functioning appendages. I don’t recall having that same lead like feeling in my left leg which was also paralyzed, but I do recall my first post stroke physiotherapy session in a neurosciences unit. After packing my newly replaced right hip with sandbags to restrict movement the physiotherapist asked me to wiggle the big toe on my right foot. Following that achievement I was asked to try to wiggle the big toe on my left stroke affected foot.

To the surprise of both of us it moved. Following this seemingly miniscule victory about ten days post stroke, gradually expanding therapy activities over three months resulted in my gaining pretty much full use of my left side. The very last physical effect to be overcome was the paralysis in the left side of my face. At this point (11 ears post stroke) my physical deficits are minimal when things are going as they should. Whenever an opportunity arises I try to open jar lids with my left hand.

Usually it works, but at times I need to use my right hand with my left hand bracing the jar. It is of little consequence that I occasionally fumble slightly when picking up small items with my left hand. When I am tired or frustrated my left leg will drag a little. At almost 11 years post stroke the most major persistent physical issue remains to be fatigue. At times my cognitive functioning is not quite what I would like it to be.

When I learn that I have misinterpreted information or that my thinking is incorrect, these can lead to confusion and frustration; which can in turn influence my physical functioning much in the same way as fatigue and overtiredness. I believe that making a full recovery refers to attaining a quality of life which is meaningful and satisfying given our present circumstances. I consider myself to be fully recovered with any residual stroke effects being simple annoyances.

My strokes themselves were an event that occupied only a microsecond of my life but resulted in very dramatic changes in my life, including changes in my personality. Early on in my recovery much of my focus was on dealing with these changes. A decade later I don’t think I am even aware of what these changes entail. I only know that most of the time everyday life is as just as good as it was over more than a decade ago.

In fact, being a Canadian snowbird celebrating Thanksgiving in Canada in October and US Thanksgiving in November allows me to be doubly thankful for all the positives in my life. This appreciation of all that is positive is enhanced by my awareness that in the early afternoon of December 24, 2003, the medical professionals attending to me believed that I was not going to survive past that day.

I remembering that there was a period that I could not sit in a wheelchair without slumping over. I remember that there were periods of time when I felt very confused. I remember times when I struggled with being easily overwhelmed by the environment around me. These experiences accentuate the positive nature of my current quality of life. Like many stroke survivors, I had a very difficult time the first two years when it felt almost impossible to view my life and stroke issues in anything other than very negative terms. I believed that life was not the way that it was supposed to be.

After these many years, I have finally accepted the notion that stroke is not something we ever get over; it is something that we learn to live with and adapt to. During this eleven year journey life became much better once I came to truly believe that the way the things are at any given moment are the way they are meant to be at that particular moment.

Copyright ©December 2014
The Stroke Network, Inc.
P.O. Box 492 Abingdon, Maryland 21009
All rights reserved.

Sunday, November 1, 2020

Finding a Place Where Handicap Does Not Matter

 


www.strokecamp.org



http://www.unitedstrokealliance.org/



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The following is an article originally posted on the now discontinued website called StrokeNet. They published a monthly newsletter. Their articles are still very useful today. With the permission of their then editor, Lin Wisman, I am able to repost them on my site. 

David Wasielewski, the author of this article, was a member of the StrokeNet staff.
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Strategies for Surviving Stroke and Diability
By David Wasielewski

Finding a Place Where Handicap Does Not Matter

A stroke often leaves a survivor with extensive physical and mental deficits. The survivor must deal with a variety of new challenges or what is commonly referred to as handicaps. Interaction and discussions with others who face similar challenges has recently led me to a personal realization. One of the ways to address a handicap is to find a place where the survivor is not handicapped, where the physical or mental challenge becomes irrelevant. Moving on after a stroke may not always be about overcoming physical or mental challenges, but rather can be about finding a place where they don’t matter

As a survivor with hemiplegia I was initially frustrated that I could no longer participate in a variety of physical activities. I initially tried to participate in some modified way. Skiing with specialized equipment proved to be too much of a challenge, physically and mentally exhausting. Being in that environment only served to emphasize my stroke related losses. Frustration and anger were evident as I continued my struggle. This was obviously not a good direction for me. It wasn’t easy but I just finally stopped beating myself up. Testing myself in this way, although necessary to the process, was not productive.

My post-stroke adventures included returning to school. This was a step into the unknown as was unsure of my ability to concentrate study and learn. I quickly realized that I was able to function in the classroom environment and that, in that environment I was not handicapped. Sitting in a classroom desk, studying and discussing issues was a place where my handicaps did not matter. In that place I was just like everyone else!

I spoke to a woman who suffered a traumatic brain injury. Prior to her injury she was a successful finance professional. The injury left unable to deal with numbers read or write, a devastating loss which ended her career. She always enjoyed singing and still retained that talent. Instead of fighting to get her finance skills back she enrolled in music classes, performs locally, and is now a music major in the honors program. She found a place where her handicap did not matter.

Another member of my stroke group is challenged by severe aphasia. Prior to her stroke she was a child care professional and enjoyed painting. The aphasia prevented continuing with child care but did not interfere with the ability to paint. Rather than struggle with communicating with children she now spends her time painting, a place where her handicap doesn’t matter. She has managed, over time, to regain some speaking ability and now appears at seminars and classes to increase aphasia awareness in the community, again a place where the handicap doesn’t matter or rather, is seen as a positive thing.

Yet another member of the group with aphasia recently decided to take piano lessons. Playing the piano is an activity where her aphasia is irrelevant.

Of course, for these survivors, the challenges of the new handicaps still exist. The finance professional needs help managing her personal finances. She carries a recorder to help compensate for the reading and writing deficits. The aphasic woman has difficulty with communications, especially phones. I have trouble navigating around campus to and from classrooms with my cane. We all find that dealing with these struggles is worthwhile on our journeys.

The lesson here for the reader is that stroke survivors have number of different strategies they can use to move on with their lives. Some may choose to recreate their pre stroke lives and overcome challenges that stand in the way. Others can and do find places to be where their newly acquired handicaps do not matter. Is one strategy better than the other? Does the survivor need to choose one or the other strategy? That is always up to the individual as we all have different paths to our new places in this world.
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Copyright @December 2014
The Stroke Network, Inc.
P.O. Box 492 Abingdon, Maryland 21009
All rights reserved.

Monday, October 19, 2020

BE-FASTER









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 Retreat & Refresh Stroke Camp, Strike-Out-Stroke and Youth Education on Stroke, the three divisions of United Stroke Alliance, have been promoting the acronym BE-FASTER as a way to remember how to recognize if a person is having a stroke, and what to do if they are. Below is a detailed explanation of what each letter represents.  
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United Stroke Alliance (USA) recognizes that each year 700,000 Americans suffer a new or recurrent stroke. Approximately 543,000 survive the stroke, many experiencing significant physical limitations as well as emotional and cognitive challenges. For almost everyone, the stroke was not a planned or wanted event. It struck without notice and changed the lives of the family forever.

BE-FASTER represents the majority of the signs of stroke. In short, most people in America do not know the signs and do not respond quick enough to receive early treatment to minimize post stroke challenges. In fact, 80% of Americans that experience a stroke do not respond quick enough because they did not know the signs of stroke.

Whether you know CPR or know the signs of stroke, you can save a life. Remember:

                       BE-FASTER!

[B]Balance - Sudden loss of balance?
If there is a sudden problem with a person's balance or they fall and can't get up, it could indicate a stroke event, especially if it is accompanied by one or more of the other indicators mentioned in the 
BE-FASTER! list.

[E]Eyes - Sudden blurry or loss of vision?
If the person suddenly loses their sight or has other sudden and noticeable vision problems, this could indicate a stroke event, especially if it is accompanied by one or more of the other indicators mentioned in the BE-FASTER! list.

[F]Face - Sudden numbness, one side droops?
Ask the person to smile. Does one side of their face seem to droop more than the other? If so, this could indicate a stroke event, especially if it is accompanied  by one or more of the other indicators mentioned in the BE-FASTER list.

[A]Arms - Arms suddenly weak. Can both raise?
Ask the person to raise both arms. If the person has lost the ability to keep one of their arms up, it could be an indication of a stroke, especially if it is accompanied by one or more of the other indicators mentioned in the BE-FASTER! list.

[S]Speech - Slurred or mumbling speech?
Ask the person to repeat a simple phrase. (The sky is blue, The grass is green. Mary had a little lamb, etc.) If the person does not have the ability to speak or their speech is slurred or hard to understand, this could indicate a stroke event, especially if it is accompanied by one or more of the other indicators mentioned in the BE-FASTER! list.

[T]Time - Call 911 NOW !!!
If you recognize any of the symptoms indicating a stroke, it is critical to get the person to a stroke hospital immediately.

Go by ambulance, they know what to do FASTER.

1.9 million brain cells are dying each minute that blood is not able to reach the brain.

There is a drug that may prevent more brain cells from being damaged by the stroke, and that may lessen the effects of the stroke.
The drug must be administered within three (3) hours of a stroke's first symptoms.

[ER]Emergency Response
Get to the ER by ambulance.

They know what to do FASTER!

This is critical to remember. If you try to drive your own car to the hospital to deliver a person suspected of having a stroke, there are so many things that can go wrong along the way. 
You could have
mechanical problems, run out of gas, get in a traffic jam, or even an accident.

Remember, those 1.9 million brain cells are dying every minute.

Some may think waiting for an ambulance is a waste of valuable time but there are things the EMT can do along the way to the hospital.

They will be driving legally faster that you can.

They will be diagnosing the status of the patient on the way, performing any emergency medical assistance needed. They will know where a stroke hospital is.

They will be calling ahead to the hospital and requesting a stroke team that will be waiting at the door when you arrive. Remember, it is critical that you get transported to a stroke hospital, diagnosed, and receive treatment within three hours of the onset of the first symptoms of a stroke.

Knowing the signs of stroke can save a life. Once a stroke begins to present itself, BE-FASTER! and dial 911.

Monday, October 12, 2020

Depression and Stroke


www.strokecamp.org



http://www.unitedstrokealliance.org/



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***************************************************************** 
The following is an article originally posted on the now discontinued website called StrokeNet. They published a monthly newsletter. Their articles are still very useful today. With the permission of their then editor, Lin Wisman, I am able to repost them on my site. 

David Wasielewski, the author of this article, was a member of the StrokeNet staff.
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Depression and Stroke
By David Wasielewski

   

       Reactive vs Clinical


As stroke survivors we, and often our caregivers, are tasked with overcoming a variety of challenges. The physical challenges that can accompany a stroke are obvious to those around us. The mental and psychological challenges are less so. A common challenge that we often face following a stroke is depression.

To an outside observer depression is often perceived as a profound sadness or anger that overtakes an individual. To the individual experiencing depression the situation is rather one where they experience a lack of these and most any other emotion. It is described by some who have written about their condition as a profound emptiness, a sense that one simply does not care about themselves and their surroundings.

The circumstances that would normally cause us to be happy, sad, angry, interested and curious simply have no effect. The connections that drive us though our daily routines, that motivate us to perform certain tasks, are lost for the depressed. For the depressed, life becomes empty and meaningless without these connections and emotional responses.

Psychologists identify two distinct types of depression. Reactive depression is where the individual becomes depressed as a result of some emotional or physical shock to their life circumstances. The loss of a loved one or a disaster that takes one’s house can result in a profound emotional shock that leaves one unable to process life events as they normally do. This is seen as a normal response to a traumatic event in one’s life. For most individuals it is something from which they recover over time. As the shock of a traumatic event wears off the individual is able to return to normal.

The other type of depression is called clinical. With clinical depression an individual experiences a depression that may or may not be related to a specific event. The individual becomes depressed and remains in that state for an extended period of time. Understanding the difference between these two conditions is often important for stroke survivors and especially for caregivers. In the process of stroke recovery it is normal for the survivor to take time to process their post stroke condition.

They need to recognize and process the mental and physical losses associated with their stroke. These losses are often significant and, as with the loss of a loved one, represent a severe shock to the system. The reactive depression associated with these losses is normal. The recovery from these losses might be extended due to the stroke if the stroke also affects the survivor’s ability to recognize and process this information. It is important to understand that the reactive depression is a normal part of recovery.

If, however, the depression remains for an extended period of time the survivor may need to seek help. The challenge with stroke is to determine what ‘extended’ means in your particular situation. It is often up to the caregiver to understand and recognize the condition and alert the proper medical professionals of your concerns. The survivor may not be able to recognize or understand the condition themselves.

The survivor may not be willing to admit to being depressed. Treatment for depression is important as a long term depression can affect one’s health, recovery and in the most severe cases can result in suicide. A depressed survivor is not motivated to exercise, concentrate or put forth the significant effort required for recovery.

The caregiver needs to help the doctor determine if a survivor’s activity or attitude seems normal for them or if there is some significant problem in the survivor that needs to be addressed.

It is important to recognize, as well, that there are effective treatments available that help a survivor overcome depression. Depression is not just an undefined emotional response but, as research suggests, can be traced to identifiable chemical imbalances in the brain. A stroke can alter the chemistry of the brain as it deals with the loss of cells and cleans itself. A stroke might also affect the limbic system that resides within the brain.

The limbic system is a collection of cells or nuclei that excrete or distribute mood altering chemicals throughout the brain. Brain cells communicate with each other by releasing then reabsorbing a variety of chemical compounds into the microscopic spaces between the cells. For example, when a danger presents itself, it is the limbic system and its chemical messengers that alert the body, causing the fear and anxiety associated with that danger.

In normal circumstances it is the limbic system and its chemical messages that cause us to be happy, sad, anxious etc. If these cells are directly damaged by the stroke the ability to experience normal emotions can be severely impaired. If the limbic system is not directly affected the brain may be altered in more subtle ways. These changes can affect one’s ability to fully recover from the short term, reactive depression described earlier. One brain chemical, Serotonin, has been identified as important in maintaining one’s sense of well-being. A Serotonin deficiency is often associated with depression.

The good news here is that once depression is recognized it can often be successfully treated. Medications that alter brain chemistry are available. Most readers will recognize Prozac as a treatment for depression. This drug blocks the reabsorption of Serotonin in the patient’s brain cells, often increasing the patient’s sense of well-being, helping to overcome depression.

Other treatments, too numerous to detail here, are also available. It is known that each individual can react differently to these medications due to the complexity of the brain. With this in mind, it is up to the doctor to experiment with the types and doses of different ‘antidepressants in an effort to determine which medication and which dosage will be most effective for each survivor

The point here is to recognize that, in stroke survivors, some depression is normal but extended periods of depression are not. Since we all know each individual is different we need to pay attention to what depression is and how long it lasts. We need to determine if and when it is appropriate to alert your medical team of the possibility of a clinical depression and seek treatment when necessary. Depression is a mysterious condition, even in healthy individuals. It is even more of a challenge to stroke survivors but needs to be recognized and dealt with in order to promote the fullest mental and physical recovery.

Much of the information presented here is contained in an instructional CD set entitled “Understanding the Brain” available through Great Courses.
http://www.thegreatcourses.com/courses/understanding-the-brain.html
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Copyright @November 2014
The Stroke Network, Inc.
P.O. Box 492 Abingdon, Maryland 21009
All rights reserved.

Sunday, October 4, 2020

Bounce Back


www.strokecamp.org



http://www.unitedstrokealliance.org/



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The following is an article originally posted on the now discontinued website called StrokeNet. They published a monthly newsletter. Their articles are still very useful today. With the permission of their then editor, Lin Wisman, I am able to repost them on my site. Moses Cherrington was a member of the StrokeNet staff. This article is Moses's response to a post submitted by "SassyBetty" on the StrokeNet site.
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Bounce Back
By Moses Cherrington

  

We belong to a very exclusive club. We only enter by surviving a stroke.

We go From: being very independent -- running our own lives, having our own timetable, choosing our own options that meet the goals that we have set ourselves To: Thinking that we are helpless, others running our lives now.

We chose the best available options that meet our health needs as we now consider our diet, medication, therapy, marriages – yes many marriages suffer as the spouse cannot take the change in the stroke partner.

Our goals have changed, but we can Bounce Back!!!!

It’s not a bed of roses, but never feel hopeless. You have the privilege of going to therapy three times a week. Many cannot do that. Start keeping a journal about what frustrates you and don’t be shy to be a sour survivor: I sat in the corner of the lounge for three months looking out the window, the visiting of friends coming less and less. Even when they would come, I would go to my bedroom and lie down. Remember, we have survived one of the greatest traumatic experiences one can have!

Build upon your survival. You have changed. You have changed. You have changed. Did I mention that you have changed?

You get tired and irritable!

You cannot use certain parts of your body. I had a hard time adjusting!

Never apologise for not inspiring others. Never apologise!

Learn to know yourself now!!!, not who you were before the stroke. Did I mention that you have changed?

Watch your moods, attitudes, lack of inspiration, and diet. Move to exercise those parts of your body that have changed or are now limited in use. Know the location of most conveniences. People look at you differently, and sometimes that is enough to set off attitudes/moods. Feelings and emotions are now so close to the surface that any little issue will let them run rampant. They can be managed. I am still learning how to manage my emotions. Learn to KNOW your new self.

Did I mention that you have changed?

You say “bed of Roses” that you have “no outlet for my creativity or my intellect…” I disagree!

You managed to share your predicament and “touched” me and would have touched many others, hence you gave me the synergy to assist me to focus on my comments for this month’s column. Thank you for being you. Thank You!

Did I mention that you have changed?

Once you have learned about your new self (keep a diary) you will discover your new strengths I see that you now are building the attribute of perseverance – you go to therapy, PT,OT and speech three times a week Well done.



To “Sassybetty” thank you for sharing yourself, I admire that you are in a Doctoral program, may some of the above observations be profitable to you.

I am now studying (online) Introduction to Financial Accounting, How to Reason and Argue, the Law of Contracts, Evaluating Social Programmes, Introduction to Human Physiology (in which I am discovering how my body works), Forensic accounting and Yes I have put together a timetable to pace myself.

As a result of the above I am learning how to learn, especially after surviving a stroke. Fatigue is still very prominent in my life!

I am now sitting on two community boards, one as a board member, the other as treasurer, and the boards meet once a month for two hours. I can handle that – it took four years to get here! This is light at the end of the tunnel! I represent the community as my new self.

What is my biggest secret? I thank God every day that I can read, think, ponder, and admire a sunrise and that He has created me to “be the best.” I experience His grace on a daily basis! How else can I be where I am now?

Did I mention we have changed…For the Better!

If a ball can bounce back after hitting a hard wall, then we can Bounce Back by knowing ourselves and then building on our strengths for the purpose of building and nurturing others. The Stroke Network has encouraged me by offering me appropriate information given by a group of survivors who belong to a very, very exclusive club.
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Copyright ©October 2014
The Stroke Network, Inc.
P.O. Box 492 Abingdon, Maryland 21009
All rights reserved.

Sunday, September 27, 2020

Can a Stroke Survivor Recover 100%


www.strokecamp.org



http://www.unitedstrokealliance.org/



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Can a Stroke Survivor Recover 100%

Answers to Recovery Questions with Tracy Markley


Tracy posted a 45 minute Youtube video on the United Stroke Alliance Community Facebook page September 21, 2020 to answer the above question.

Tracy is a Fitness Trainer in Florence Oregon. She is a Fitness Specialist, Personal Trainer, Yoga and Pilates Instructor. She is also an educator and an author of 8 Fitness and Health books. Her books are on Stroke Recovery, Fall Prevention, the Brain and a book on Healing Loss coming soon. She is known in the fitness industry as the "Stroke Recovery Specialist Personal Trainer". If you are looking for a Personal trainer on Zoom or live or Books on Stroke recovery and exercise, you should visit her website. Tracy is also a 2020 IDEA Personal Trainer Finalist and Runner up for Medical Fitness Trainer of the Year with the Medfit Foundation. She is a Pro Trainer with FiTOUR and a radio show and podcast host. "The Health and Fitness Show with Tracy"

She was asked her thoughts on this question?
"Can a Stroke Survivor Achieve 100% Recovery or is this a false belief?"

I know it's long, but watch the whole video. Something may help you. It could be the best 45 minutes of your life with stroke. 

You may contact Tracy with questions using the following link:
www.tracymarkley.com
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Sunday, September 20, 2020

In Her Patients’ Shoes


www.strokecamp.org



http://www.unitedstrokealliance.org/


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Article provided by Medtronic

Medtronic is a global leader in medical technology, services, and solutions. We collaborate with others to take on healthcare's greatest challenges.
https://www.medtronic.com


In Her Patients’ Shoes: Lisa’s Stroke Story

For more than 10 years, Lisa has been a stroke coordinator and cared for stroke patients in Wausau, Wisc., ensuring they get the best treatment and helping them in their recovery. She is a stroke expert.

One morning, in August 2017, Lisa learned even more about stroke: She learned what it was like to actually have one.

At the age of 51, Lisa was rushed to the hospital, her workplace, and the familiar faces of her coworkers were now treating her. Luckily Lisa received medical care quickly, but even then, she experienced several post-stroke conditions including facial droop and arm weakness. After several tests, her stroke care team couldn’t tell her what caused her stroke. Her stroke was a cryptogenic stroke, or a stroke of unknown cause.

In the months following her stroke, Lisa worked hard to recover — physically and mentally. She found her physical recovery to be progressing, but mentally, she was stressed. She didn’t know what caused her stroke and she didn’t know if, or when, it would happen again. Lisa, an independent and adventurous woman before her stroke, was scared and afraid to be alone.

Finding Peace of Mind — and Atrial Fibrillation

Lisa’s doctor suggested they use the Reveal LINQTM Insertable Cardiac Monitoring (ICM) System to monitor Lisa’s heart and determine if her stroke could have been caused by atrial fibrillation (AF). AF is a common condition in which the upper chambers of the heart beat very fast and irregularly. As a result, blood is not pumped effectively to the rest of the body and may pool and clot. If a clot dislodges, it can travel to the brain and result in a stroke. AF can happen infrequently and without symptoms and, when left untreated, AF patients have a five times higher chance of having a stroke.1

With the Reveal LINQ ICM continuously monitoring Lisa’s heart for irregular heart rhythms, Lisa found peace of mind and started gaining her independence back. She felt comfort knowing that if she was having irregular rhythms, her monitor would find them, and her doctor would be informed.

Almost one year later, the ICM detected AF and with the information from the monitor, Lisa’s doctor prescribed medication for Lisa to help prevent her AF from causing another stroke.

Lisa is now back to work and she immediately noticed her care for stroke patients has changed because of her experience — she can put herself in their shoes. She truly understands their fear, and she’s able to share her personal experiences of what helped her get through the challenges of stroke recovery.

To learn more about cardiac monitoring for unexplained, or cryptogenic, stroke, visit MonitorYourHeart.com
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Treatment with a Reveal LINQ Insertable Cardiac Monitor is prescribed by your physician. This treatment is not for everyone. Please talk to your doctor to see if it is right for you. Your physician should discuss all potential benefits and risks with you. Although many patients benefit from the use of this treatment, results may vary. For further information, please call the Medtronic toll-free number at 1-800-551-5544 (7:00 a.m. to 7:00 p.m., Monday–Friday, Central Time) or see the Medtronic website at www.medtronic.com.

Reveal LINQ™ LNQ11 Insertable Cardiac Monitor and Patient Assistant

The Reveal LINQ insertable cardiac monitor is an implantable patient-activated and automatically-activated monitoring system that records subcutaneous ECG and is indicated in the following cases:

■ Patients with clinical syndromes or situations at increased risk of cardiac arrhythmias

■ Patients who experience transient symptoms such as dizziness, palpitation, syncope, and chest pain, that may suggest a cardiac arrhythmia

This device has not specifically been tested for pediatric use.

Patient Assistant
The Patient Assistant is intended for unsupervised patient use away from a hospital or clinic. The Patient Assistant activates the data management feature in the RevealTM insertable cardiac monitor to initiate recording of cardiac event data in the implanted device memory.

Contraindications
There are no known contraindications for the implant of the Reveal LINQ insertable cardiac monitor. However, the patient’s particular medical condition may dictate whether or not a subcutaneous, chronically implanted device can be tolerated.

Warnings and Precautions
Reveal LINQ LNQ11 Insertable Cardiac Monitor
Patients with the Reveal LINQ insertable cardiac monitor should avoid sources of diathermy, high sources of radiation, electrosurgical cautery, external defibrillation, lithotripsy, therapeutic ultrasound, and radiofrequency ablation to avoid electrical reset of the device, and/or inappropriate sensing as described in the Medical procedure and EMI precautions manual. MRI scans should be performed only in a specified MR environment under specified conditions as described in the Reveal LINQ MRI Technical Manual.

Patient Assistant
Operation of the Patient Assistant near sources of electromagnetic interference, such as cellular phones, computer monitors, etc., may adversely affect the performance of this device.

Potential Complications
Potential complications include, but are not limited to, device rejection phenomena (including local tissue reaction), device migration, infection, and erosion through the skin.

Medtronic MyCareLink™ Patient Monitor, Medtronic CareLink™ Network, and CareLink™ Mobile Application

Intended Use
The Medtronic MyCareLink patient monitor and CareLink network are indicated for use in the transfer of patient data from some Medtronic implantable cardiac devices based on physician instructions and as described in the product manual. The CareLink mobile application is intended to provide current CareLink network customers access to CareLink network data via a mobile device for their convenience. The CareLink mobile application is not replacing the full workstation, but can be used to review patient data when a physician does not have access to a workstation. These products are not a substitute for appropriate medical attention in the event of an emergency and should only be used as directed by a physician. CareLink network availability and mobile device accessibility may be unavailable at times due to maintenance or updates, or due to coverage being unavailable in your area. Mobile device access to the internet is required and subject to coverage availability. Standard text message rates apply.

Contraindications
There are no known contraindications.

Warnings and Precautions
The MyCareLink patient monitor must only be used for interrogating compatible Medtronic implantable devices.

See the device manual for detailed information regarding the implant procedure, indications, contraindications, warnings, precautions, and potential complications/adverse events. For further information, please call Medtronic at 1-800-328-2518 and/or consult the Medtronic website at medtronic.com.

Caution: Federal law (USA) restricts these devices to sale by or on the order of a physician.

1 Fuster, et al. Journal of the American College of Cardiology. 2006; 48:854-906.
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