MegaBrain in Washington D.C.

by Chuck Jones

Last Thursday, May 16th, I drove out to the Washington D.C. area from Peoria, Illinois to present the MegaBrain and our learning center, ELSIE, at the Stroke Month Megabrain Event hosted by Inova Neuroscience Institute held at the Tyson Corner Center Shopping Mall on May 18th. At last count, two thousand shoppers walked through the MegaBrain, visited the events stroke awareness displays, stroke risk assessment counselors and screening tables.

Forgive me for being a bad note taker. If you see any name corrections needed in this post, Karen and Joanna have my email address. I will make any corrections immediately. 

Who Is Inova

I copied the following description of Inova off their website:

 (http://www.inova.org/inova-neuroscience-institute):

"Inova Neuroscience Institute is a regional leader in the diagnosis, treatment and research of complex neurological conditions involving the brain, spine and nervous system.

With eight specialized programs, the Institute is the largest program of its kind in Northern Virginia. Our highly trained and nationally recognized physicians treat a wide range of conditions, including neurotrauma, spine conditions, brain and spinal tumors, memory disorders and stroke and cerebrovascular disease. Our comprehensive research program is committed to the advancement of treatment protocols.

Inova Neuroscience Institute employs a multidisciplinary approach so that patients and their families experience expert, coordinated care from diagnosis through rehabilitation."

Karen Going and Joanna Fazio were my main contacts there and they helped me set up the MegaBrain Saturday morning and made sure throughout the day that I was doing OK. I appreciated that very much as I do need a lot of that reassurance during those long demo days.

Thank you Karen and Joanna! 

Karen is Cerebrovascular Lead of Neuroscience Administration at Inova Fairfax Hospital in Falls Church, Virginia. Joanna is the Marketing and Public Relations Manager at Inova Fairfax Hospital. 

Here they are staffing the Inova Services table. Karen is seated on the left and Joanna is seated next to her. Stroke Coordinator Jalil is at the far right. Standing behind Karen is Barb Mancini, Director of the Neuroscience Line at Inova.

Who or What is ELSIE and MegaBrain

ELSIE and her MegaBrain were set up in the Fashion Court near Nordstrom, a leading fashion specialty retailer. The Mall also had a Macy's and a Bloomingdale's. To say that the mall is huge is an understatement. Nordstrom alone would probably house our entire Peoria Northwoods Mall.  

Here you can see the MegaBrain in the background and ELSIE the learning center in the forefront. 

  

Ever been inside a brain before? Well, as any good brain surgeon will tell you, "Don't expect nice carpeting like this one has." but you'll get the general feel of it once inside.

ELSIE, our computer display, has four laptop computers programmed with multiple choice questions about stroke awareness, prevention and detection. The major emphasis is teaching the acronym F.A.S.T. that is an easy way to identify stroke symptoms .

Here's one of her screens:

But Wait, There's More
While I believe ELSIE and her MegaBrain were the star of the show (ahem...cough, cough) there were many other useful things going on, too.

Tell Me Town

Cindy Chambers was there with books she wrote for children, addressing stroke awareness as well as books on other topics. Cindy is the author of The Beamer Book Series and Tell Me Town. 


According to their 
website: (www.tellmetown.com) "Tell Me Town was created to give children and their families a delightful experience with the characters from The Beamer Book Series. Tell Me Town combines fun, learning and support with kindness and respect for all. Tell Me Town is a happy place where children and their families can take a break from the challenges of life and spend time in a place where everyone is thoughtful."

As Karen Going explained: "Cindy wrote the Beamer book series and generously donated not only her time but her books with signatures and plush Beamer dogs. Cindy’s books have both primary and secondary stroke prevention teaching and I know that this contribution will save someone’s quality of life." 

Stroke Assessment Team
In addition to the MegaBrain and ELSIE promoting stroke awareness, there were medical professionals conducting stroke assessments and consultations.  





Monique, shown at left, and Agnes, shown below, are conducting stroke risk assessments. 









Agnes helping a couple of visitors. 

Stroke response nurses Minette, Elizabeth and Kim promoting stroke awareness. I might be in trouble here, too, because I'm not sure I got Elizabeth and Kim's names right or in the right order.

Sally and Barb staffing the "front desk", explaining Inova services and directing visitors to the entrance of the MegaBrain. 





Cholesterol Levels Are Important
Another aspect of stroke awareness is cholesterol awareness. Cholesterol levels have an impact on many heart conditions as well as stroke. As part of Inova's event there were medical staff onsite providing cholesterol assessments, screenings and tests as well as awareness.

This is Susan and Pat fielding many of the questions visitors had about cholesterol. They sat with them and led them through the risk assessment process prior to having their cholesterol levels tested.




 And this is Tom. Tom had the critical task of doing the actual cholesterol screening. Whenever I looked in the direction of his table I saw people staged up to get their blood tested after Karen's and Pat's assessments. 


Ever Wonder About Sodium In Food 
One more thing I want to point out is the importance of controlling the sodium levels we consume everyday. Sodium has been proven to raise Blood Pressure levels.



Pamela, standing to the left of this picture, had an eye opening presentation on the amount of sodium we consume everyday without even realizing it. 




She showed me a glass tube with about 1/4 teaspoon of salt that barely covered the bottom of the tube and explained that it is the equivalent of what the FDA recommends for one day's total sodium intake. She then picked up another tube of the same size that was almost completely filled with salt and explained that it was the amount of sodium found in the average can of soup. She had many more comparisons like that with other foods.

Something for the Children
Children were not left out of the awareness process, either. They even had a table set aside just for them, to color and learn about F.A.S.T. 

In Closing
I'd like to say that this event was one of the most well organized and well run events I've attended. Karen and Joanna did an exemplary job of putting this together and they reached a lot of people with the message and benefits of stroke awareness.

I want to give special thanks to Karen's husband, Walter, for taking ownership of the exciting task of using the "clicker" and counting everyone who went through the MegaBrain. I have done this myself in the past so I can empathize with him. There were about 2,000 people who walked through the MegaBrain so his thumb may be rather sore today. I want to add that Walt also talked with every kid walking through the brain, who was active in sports, about sport safety. 

I also want to especially thank Mike Schmeister, who is the manager of the Neuro-diagnostic Department at Inova Fairfax,  and Karen's son Neal Going for helping get that 350 lb beast of a brain back in its box and into the van for the trip back to Peoria where it will be displayed at our Peoria Chief's baseball Strike Out Stroke (tm) event.  The Chiefs started in the early 1980's as a minor league affiliate of the Chicago Cubs before joining the St. Louis Cardinals farm system this year. 

Unfortunately I did not get a picture of Neal, Karen's and Walt's son, but here is Mike and Walt, to the left of the men in black, who I believe are from Fairfax County EMS, and a couple of the Inova Stroke Response nurses on the right. I don't know what kind of jacket that fourth guy from the left is wearing but my flash sure lights it up, doesn't it? 

I know there are volunteers and others who I did not get a picture of or mention here (and I sure hope I got everyone's names right). I apologize for that, but being left out of my feeble rantings in no way diminishes the work and benefit they provided to make this event a success. I may not know who they are but Karen and Joanna do and  I'm sure they will see that they get the thanks they deserve. Thank you all!

This is how ELSIE and her MegaBrain exited the mall to the purple loading dock.

And this is how ELSIE and her MegaBrain got to Peoria.

Credits
. Karen Going without whom this would not have been possible.

. Rob Theis and Barb Mancini of Neuroscience Admin for endorsing the event.

. Joanna Fazio who worked tirelessly on the planning and funding and execution.

. Cindy Chambers of the Loudoun Board - author, and her husband Rick and friend Dory who came
   to support Megabrain.

. Jalil Bentaleb from Alex and Jean Snyder from Fair Oaks Stroke Coordinators.

. Kim Boucher, Minette Ty and Elizabeth Benkert Neuroscience Research Group stroke 
  awareness and for displaying the many posters.

. Lynda Ariaban, RN from Loudoun and Sally Jewert, RN from IFH stroke information greeters.

. Julie O’Brien, NS Admin Memory Center and Neuroscience.

. Zeena Huang from Genentech.

. Nova Source- nutritional counseling, stroke risk assessment, point of care cholesterol testing and
  counseling on dyslipidemia.

. Melissa Robinson, Monique Archibald, Tom Doremus , Pat Hertig, Susan Hawk and
  Pam Matney Healthsource staff.

. Agnes Bartek, RN from Interventional Radiology counseling and promoting stroke awareness.

. Dr.Cochran, Dr. Ecklund, Dr. Bicksel and Dr. Tehrani who attended and supported the event.

. Mary Munchak from Fair Oaks Lab  front line brain greeter.

. Marina and Jack Support Group members.

. Fairfax County EMS.

. Walter, and son Neal of the Going team.

. Larry Schaer Retreat & Refresh Stroke Camp Associate Director helped with grant money to pay for the event.

. Chuck Jones Volunteer and self appointed Vice President of Temporary Logistics and Computer Services, Retreat & Refresh Stroke Camp. 

-------------------------------------------------------------------------------------------------

Camp Testimonials

by Chuck Jones

IMAGINE . . .

You (or a loved one) have suffered a stroke. . .

You survived immediate Emergency care. . .

Your acute care and extensive rehabilitation has ended. . .

You try to reclaim a vital and meaningful lifestyle while enduring the daily restrictions of a stroke . . . AND . . .

You have no continued support!

Nearly 250,000 new stroke survivors and caregivers face these challenges every year.

NOW . . . IMAGINE . . .

...that you can escape for a three or four day weekend of new friendships and opportunities, while enjoying the benefits of relaxation, continued education, socialization and ongoing support.

That's where we come in. Retreat & Refresh Stroke Camp provides opportunities to:

meet other stroke survivors and their caregivers,









relax and enjoy the outdoors,

participate in various activities, 

read or write a good book, take a nap or a quiet stroll in the woods.

                   
                                 

Indulge in pampering: manicures, pedicures, 

massages.

Have healthy meals, prepared for you onsite.

Take part in craft projects; painting, soap making, jewelry. 









Join others in games (including Wii), movies, fishing, boating, hiking, and much more,

                                               And music!


What we have found: Direct support to survivors and caregiver, educational opportunities, better public understanding, renewed hope and motivation, opportunity for survivors to help other survivors, increased community support for survivors, caregivers, and family members.

Testimonials

Survivors Say:

"Little did I know when we signed up how much fun and knowledge I would gain from Stroke Camp. Stroke Camp is very important because it allows survivors and therapists an opportunity to share knowledge and interact socially outside of the hospital setting. It was especially meaningful as a celebration and honor to all caregivers as they were able to get pampered with manicures, facials, and massages, while enjoying a weekend socializing with other caregivers, sharing stories, and merriment the whole time. We danced, we sang, we beat on drums and played instruments, enjoyed spectacular food and service. We fished, boating was made available, and we cruised around on golf carts. All in all, at the end of the day, we needed Stroke Camp more than it needed us." 
-Mark, Nebraska

Caregivers say:

"It was well organized and offered such a variety of activities! For me as a caregiver, it was a great release and welcome relief from our normal routine. Everyone helping, made us feel so comfortable and were there just when we needed them."
-Cheryl, Colorado 

Volunteers say:

"Although I was only able to stay for one day, I don't remember when I ever worked harder, felt more humbled and rewarded all at the same time. It was an incredible experience and one where I learned a lot! Several of my patients attended this year. All I can say is 'WOW!' It was amazing to see how they blossomed and laughed and just lived!" -Lisa, Illinois 

"I've been volunteering at camps since 2004. We have a great majority of repeat campers every year, so that should tell you something right there. We have from twenty up to sixty campers and volunteers attending our three day camps throughout the United States. It is heart warming to see our stroke survivors laughing and enjoying themselves and feeling almost normal again. It does wonders for them to meet and share their experiences and see how other survivors are progressing and improving, giving each more hope for their own future. It is also a great way for the caregivers to meet and compare notes, share ideas and experiences, and gain encouragement. Both the survivors and the caregivers realize they are not alone on their journey to recovery."
-Chuck, Illinois
--------------------------------------------------------------------------------
Please see our 2013 camp schedules on our web site:
http://www.strokecamp.org/?camplist&camplist

----------------------------------------------------------------------------------------------------

Blog About a Blog

by Chuck Jones

I thought I'd do an article about blogging this week. I guess that's what happens when you try to do a new blog article every week. There are those times when you scratch your head and wonder what to do next and then grab the first thought that comes into your head.

So, what is a blog? Well, at least you know how to get to one or you wouldn't be reading this. A blog is a web log, shortened to the word blog, if the word blog could be considered a word, which we will do in this article because "Who am I to blow against the wind?" A blog is a place to present ideas, stories, topics, information, stuff like that. You will find blogs on the internet covering many topics. You name it and there is probably a blog about it. This blog, sponsored by Retreat & Refresh Stroke Camp (RRSC), is about stroke related information, and events provided by the camp. The idea is that the reader gains some knowledge or entertainment, at least, and has the opportunity to respond with their own thoughts, information, experiences and knowledge about strokes or anything else that happens to strike their fancy at the time. We are open to pretty much any topic. Responses aren't totally necessary for a blog to succeed but they certainly are welcome and sometimes they spark ideas for future articles.

Wikipedia includes this in their definition of a blog:  "Many blogs provide commentary on a particular subject; others function as more personal online diaries; others function more as online brand advertising of a particular individual or company. A typical blog combines text, images, and links to other blogs, Web pages, and other media related to its topic. The ability of readers to leave comments in an interactive format is an important contribution to the popularity of many blogs. Most blogs are primarily textual, although some focus on art (art blogs), photographs (photoblogs), videos (video blogs or "vlogs"), music (MP3 blogs), and audio (podcasts). Microblogging is another type of blogging, featuring very short posts. In education, blogs can be used as instructional resources. These blogs are referred to as edublogs."

Our blog has used all of those types of media. Also, using the above definition, I guess our blog is an edublog sometimes, too.

This blog you are reading now is published using a blog template provided by a product offered, free of charge, by an internet company called Blogger. They have several templates available and I chose the one you're using now as one that fits our needs.  If you've ever had the desire to start your own blog, this product is relatively easy to use. Their web address is www.blogger.com. I say relatively easy because there is a learning curve determined by your experience dealing with computers and writing in general. However, Blogger has an excellent place to get help from their support staff and a forum where bloggers like us can go to help each other with questions and problems. Like most things in life, the more you use something the better you get.
 
Since December of 2010 there have been about 76 articles posted on this blog site. Many of them have come from camp volunteers,  medical staff from the hospitals that sponsor us, and many have come from the stroke survivors themselves, but most have come from the staff of  RRSC.

Each article is called a page in blogger speak. The Blogger product keeps track of the number of times a page is viewed and, at the time of this writing, our blog site has had almost 10,000 page views since startup.  

You might ask who these viewers are. I'd like to know, too, because I'd like to thank them for visiting. I can't tell specifically who they are, but what is available is their country of origin, browser type, how many times an article is viewed, and generally what web address the viewer typed in to get to this blog. I'd say that 70% of the page views come through the blog address itself, rrscb.blogspot.com, and the RRSC Facebook page. Another 20% come through the camp web site, www.strokecamp.org. The rest have come from Google searches and a few have come from spammers or autobots that scan for sites to spam. 

Yes, we've been spammed many times and that is the reason we have to use that clunky word verification thing for replies from you. I know it discourages many of you from replying, and I don't blame you. I keep hoping Blogger will come up with something better, more friendly for you. You may not have seen any of the spams because the blog product itself does a good job of filtering out a lot of them, and the rest, the ones that do get through the filter, I delete myself when I get automatic email notifications. 

The spammers leave a message that is supposed to make you think they read your article and liked it and then ask you to visit theirs. They're wording is so phony it's obvious that they are not real replies and they always include a link to a product they're trying to sell. My favorite spam is one about buying toe rings. Now, if any of you readers are the one who sent that, I apologize and will give you another chance to sell me that toe ring.  

Some very interesting statistics I get are:

The country of origin. Here's are the top ten countries visiting our site to date and the number of times they viewed a page:

United States - 5,200
Russia           -    451
France          -    306
UK                -    300
Germany      -    215
Latvia           -    135
Ukraine        -    125
Sweden         -    121
China            -     87
India             -     55

I am convinced 95% of these are legitimate readers. I believe we are reaching a lot of people in need of stroke information and reassurance in other countries.

The top ten operating systems readers are using to visit us are:

Windows       - 7139 (87%)
Linux             - 300 (3%)
Macintosh     - 253 (3%)
iPad               - 147 (1%)
Android         - 136 (1%)
iPhone           - 89 (1%)
Windows NT - 37 (1%)
Other Unix    - 12 (<1%)
BlackBerry    - 10 (<1%)
compatible    - 7 (<1%)

I don't know what compatible means. Maybe it's a supercomputer in the Pentagon. As you can see we are being reached by every technology available today. 

I hope you found this informative or at least entertaining. If you have any questions or have something you'd like to contribute, you know where to find me. 

-Chuck

Music Therapy Part Three - Spirit of the Drum

by Chuck Jones

As I mentioned in last week’s blog article, I had the privilege of attending a Native American Christian Church located in East Peoria, Illinois, and had the pleasure of meeting their pastor, Pastor Gary Billiot. Pastor Billiot is Native American. The church is The Native American Fellowship Dayspring United Methodist Church, 201 North Norwood Place, East Peoria, Illinois 61611. 

If you’ve ever been to the EastSide Centre in East Peoria, Illinois to use their fitness center or attend a school baseball or basketball game or go swimming at the Splashdown Water Park you have probably seen the large log cabin building that is the church up on the hill. If you ever want to attend a unique, spiritually uplifting church service, I urge you to attend there on any given Sunday. Their church services start at 1:15pm so try to be there by 1:00.

The church service is basically a Methodist church format similar to most Protestant churches. The congregation is mixed Native American and non-Native American. The atmosphere and dress code is relaxed, non-formal. The congregation is seated in a double row circle around a large ceremonial drum instead of in rows of parallel pews. During the church service five Singers sit around the ceremonial drum, with other church officers sitting behind them. The Call To Worship begins with a prayer led by Pastor Billiot, followed by the awakening of the drum, scripture readings, from the bible, by a congregation member, and the sermon by the Pastor. There is even a children's "sermon" led by a lay person reading a Native American story.  

A couple times throughout the service the ceremonial drum is used to offer prayers to God, the Holy Spirit, and our Savior Jesus Christ, to give thanks, to request healing and to provide guidance in our lives. I cannot explain the effect the drum ceremony had on me personally. Suffice it to say it is an uplifting experience.

The bulletin I was handed the day I attended Dayspring contained an insert with following description, written by Pastor Billiot, of what the drum ceremony meant to the Native American culture, how it enriches their lives, and still has meaning to them and to Dayspring today.

The following is that bulletin insert:

---------------------------------------------------------

We as Native American Indians have a rich culture and because of this Indian drums are probably the most familiar instruments among the Native Tribes and non-Native people alike. From the beginning the Drums have always been at the center of a lifestyle for Native Tribes. This type of relationship and respect forms a meaningful foundation of our religious views, Native American spirituality as well as social gatherings where the drum is represented as the heart of all Native American events. The Native Indian drum has become an essential way of expressing Native American spirituality. Not just music, art or dance but also it is a method of praise to the Creator and honoring Mother Earth who provides the space for dancing, or for gathering for religious purposes.

Embellishing the drum becomes a very spiritual and personal task to the owner. The ones who sit around the drum become communicators who express their inner most spiritual feelings and beliefs in the Creator. They honor and respect the drum not because it holds great significant powers but honor it for what it represents. The drum is, “the bringing together the spirits” of everyone who has touched the drum in a good and positive way. It is honoring the one who have touched the drum and has gone on to the spirit world; the ones who have bled and dripped their sweat on the raw-hide or wood while putting the drum together to bring out that perfect sound. This sound will inspire the listeners and bring them to a special place of spiritual power and energy. In some tribal cultures the Singers (sometimes known as drummers) will place something of personal value inside the drum to permanently join himself with the drum. This has always been a spiritual aspect of life pertaining to Indian beliefs and the Indian drum. In our history we have always used drums in various ways to connect with a higher power known to most as Kitche Manitou, “The Great Spirit”. To the Native people, the drum is much more than just a decoration or a remarkable musical instrument. The drum is believed to speak to the Singer in a positive spiritual way and in turn, this is transferred to the listeners. The circler patterns of the Native drum represent the earth and life cycle and when the drum is awakened it awakens a new spirit in us ready to receive whatever the Great Spirit has for us. The most well-known drums are Indian hand drums used in many personal healing and religious ceremonies as well as public ceremonial Gatherings.

When Native Americans begin to see the drum as a living entity and when the songs and dances are being done by beats of the drum, they begin to find a closer spiritual relationship with the Creator, the mysterious powers of the Great Spirit. These Native American drums are recognized as a living entity, this indicates a strong connection with the Creator. To many Native American tribes the Native drum contains thunder and lightning, and when it is awakened it helps to get the Great Spirits’ attention and it also helps contact the spirits of the Native American ancestors.

With all this in mind when you build a drum, a selected person who is referred to as the drum keeper, will be chosen to watch over the sacred drum. In Native Indian culture this is a highly regarded honor to be the keeper of the sacred drum and in some Indian Tribal culture and custom the drum keeper is usually the oldest son of a selected family.

Because we look at the drum as a living and breathing entity; we believe that the spirits of the tree and animal that the drum was made from live within the drum. We also believe that the beats of the drum help call out to these spirits and the spirit of our ancestors to protect and watch over us. However, it is not just that of the wood and animal skin, it is the power of our Creator that dwells within all living things that brings all this together, (otherwise all we would have to do is go and touch the logs that are sitting on the ground or touch a cow).

Many of the Native American drums differed in sizes among diverse tribes. Also, the drums were completely different and made different according to Native Indian traditions. However, most all of the ancient Native American drums were made from wood with animal skin heads. In addition, depending on where the tribes lived some Native American drums were made from deer skins and others were made from buffalo skins or other type of skin found in the area. These drums were extremely important and sacred to the Native American tribes, and there were many sacred ceremonial guidelines surrounding a drum. Many Native Americans also had other percussion instruments such as hand rattles, which is similar to the drums in the standpoint of honoring the Great Spirit. The drums had many other uses to the Native people and some included healing ceremonies, war preparation dances, good hunting, and even festivals to honor the Creator to help bring a good harvest. There are many handmade Native drums that can be found nationwide on many Native American Indian reservations and at many of these places you can see sequence of events from some of the tribal ceremonies. The beating of the drum is compared to the beating of the human heart and is said to represent the heart beat of Mother Earth, “which is a belief of most traditional Native American”. As a result, the drum in this respect, become the vehicle which connect one's spirit with that of Mother Earth and the Great Spirit throughout the history of Native Americans.

-----------------------------------------------------------

Music Therapy Part Two - Drum Circles

by Chuck Jones

For May and June I am going to try to work in some blog articles on drum circles and some more on music therapy.  We have been doing drum circles at our camp retreats since we started, and at first, I looked at them as thirty and as many as sixty people with drums or other sound producing instruments, sitting in a circle led by our music therapist to help break the ice and as a vehicle to introduce everyone. Later, to my amazement, I discovered that drum circles, and other types of music, have real therapeutic value and that Music Therapy is a board certified profession.   

Another thing that I discovered is that there are many different kinds of drum circles and they are used for many different reasons. I'll cover the ones that I have found through research on the internet and present them as accurately as possible. There is some controversy regarding the structure and intentions of some drum circles just as there seems to be in about every aspect of life, so please forgive me if I have offended you or your version of a drum circle and know that I will work with you, if you wish, to present your version as accurately as you see it. The majority of this particular article comes from Wikipedia.  As a computer user I'm sure you've heard of Wikipedia. I like using Wikipedia because their definitions are free of copyright issues, mostly accurate, and I can cut and paste them into these articles easily. You'll see my added comments as bold italics like this. Here is Wiki's definition of a drum circle.        

Drum Circle

 "A drum circle is any group of people playing (usually) hand-drums and percussion in a circle. They are distinct from a drumming group or troupe in that the drum circle is an end in itself rather than preparation for a performance. They can range in size from a handful of players to circles with thousands of participants. 

"In 1991, during testimony before the United States Senate Special Committee on Aging, Grateful Dead drummer Mickey Hart stated:

'Typically, people gather to drum in drum "circles" with others from the surrounding community. The drum circle offers equality because there is no head or tail. It includes people of all ages. The main objective is to share rhythm and get in tune with each other and themselves. To form a group consciousness. To entrain and resonate. By entraining, I mean that a new voice, a collective voice, emerges from the group as they drum together.'"

I had to look up the word entrain to see what Mickey Hart was trying to say and the best I could figure out was he meant join.  

Types of Group Drumming and Drum Circles

According to the Wikipedia definition, the term "Drum Circle" originated in the United States during the late 1960s and early 1970s for any group of people, particularly counterculture groups, who gather (informally) to play music together. The terms "drum jam" or "jam session" could be substituted. Settings include beaches, parks, concert parking lots, festivals, and retreats. Do not confuse this definition with that of the Drum Ceremony, such as those done by Native Americans,  which we all know, originated way before 1960. The determining criteria for a drum circle is that the music is improvised and co-created by the participants. Drum circles may or may not be open to the public, but the music is always a group expression, not constrained by genre, instrumentation, or directed by one person or sub-group.

In Western countries, drum circles have developed into two main types:

Community - free-form drumming, often open to the public and entirely improvised in-the-moment.

Facilitated or Conducted - group drumming that is musically directed by a specific person, often called a facilitator. It is this one that more closely resembles what we do at our camps. I am planning to publish an article on this blog in the near future, written by one of our Music Therapists, that will address our drum circles as well as other forms of music therapy.   

All forms of drum circles are used in a variety of settings and applications including; team building, recreational music making, wellness, education, celebrations, spirituality, personal growth, etc.

The Community Drum Circle

Community drum circles are informal gatherings of people who meet for the purpose of playing drums together. They often take place in public settings such as parks or at the beach, but may also be organized via a community center or similar body. 

Instrumentation centers around drums and percussion, but may include other instruments, such as flutes, didgeridoos, and other non-percussion instruments. Practically anything that can be banged on to make noise can be used as a percussion instrument such as cans, buckets, pipes, etc. One need not possess or purchase a drum to participate. Community drum circles differ from facilitated or conducted drum circles in that the music is entirely improvised through a process of group interaction. 

There may be a facilitator or moderator who acts to shape the experience through discrete actions, such as helping to maintain a steady beat, helping those who need it, and generally managing the environment to see that everyone is able to participate fully. The participants make up the music as they go along, using their listening and playing skills to make musical connections and express themselves in any and all ways that feel right. Participation is voluntary and often includes drumming, singing or chanting, dancing, and listening. 

Community drum circles often attract both regular and drop-in participants of all ages and can take place just about anywhere. Community drum circles are the original and most popular form of improvised community drumming.

The Facilitated or Conducted Drum Circle

A "facilitated" drum circle is a form of group drumming in which a person seeks to focus the intent and improve the quality and effect of the activity, making it easier for people to effectively participate by taking a more directive approach. The facilitator (leader) takes responsibility for the physical space, arranging chairs and instruments to optimise communication and connection in the group. He or she may provide a range of instruments to create a full and balanced percussion orchestra. In this way, the experience can be thought of as a "standardized drumming circle," as opposed to the more free-flowing and open community drum circle. 

The facilitator is constantly monitoring the music in the group, and generally being encouraging and accepting of participant ideas. In this way, the facilitator takes on a role similar to that of a music teacher or drumming instructor whose goal it is to empower the participants and encourage them to share their ideas. At the beginning the facilitator directs the music through verbal and non-verbal cuing. Cues, which often mirror the movements of an orchestral conductor, are directed at the participants, who respond to the leader. This creates a leader/follower dynamic between the facilitator and participants. Actions such as rolling (rumbling), starting, stopping, raising/lowering the volume, accents, and when to play/not play are often given by the facilitator. 

Conducting is not normally part of a traditional (community) drum circle, and therefore makes this type of circle a unique experience and very different from a community circle. Facilitators with training and experience in other areas and professions, such as music education, music therapy, and corporate training, may use a range of tools and approaches that enable them to work with diverse populations. These types of experiences are more accurately referred to as 'drumming programs,' rather than drum circles, in the traditional sense. 

Contrary to that last statement, at our camp retreats, we do refer to the group as a drum circle and we do use only board certified music therapists as facilitators. 

Other forms of drumming that are related to drum circles include

- "Guided Interactive Drumming" - highly structured 

    drumming-based programs that are led by an individual or group

    to reach non-musical goals.
- "Drum Classes" - education-based drumming for the purposes of

    building musical skills and knowledge.
- "Drum Ensembles" - performance-oriented drumming groups who

    practice and perform music on drums, often for dance.
- "Clinical Improvisation" - a drumming group within a Music 

    Therapy session, led by a certified Music Therapist. (I
    highlighted this one because it also refers to what we do at
    our camps.)

Group Drumming with a Spiritual focus

Neotribalism

Is an inclusive way of life that is focused on creating a positive enhancement of self of identity while enforcing a no harm to the collective group attitude. Neotribalism belief system is evident in the music of Neotribalism; the postmodern drum circle where the only leader is the preservation of the groove or music consciousness. This development of musical consciousness takes the participation of the individual to create a collective more powerful and beautiful display of sight and sound. "In beat, life begins and it is only the maintenance and sacred keeping of the beat that life will endure".

Neopaganism

Neopagans have created another type of drum circle. At Neopagan festivals, people gather around a large bonfire, the drummers generally sitting on one side to encourage better listening. The musicians sit together and play while dancers dance and circle around the fire. Often, those present will stay and play throughout the night until dawn, treating the evening as a magical (or alchemical) working. Sound is not limited to drumming alone; there is also chanting, singing, poetry, and spoken word pieces. This type of drum circle is not usually facilitated.

Shamanic Drumming Circles

This type of circle tends to center around Native American Cultural Drums and rattles but is primarily focusing on the spiritual rather than the musical aspects of the culture. They are a facilitated ceremony but the leader is facilitating a shamanic journey type process rather than a musical event. Shamanic drumming is generally simple and repetitive, often considered as a form of prayer or method of trance induction, rather than as music or entertainment. During a shamanic trance or shamanic journey, the shaman uses the steady beat of the drum as a "lifeline" to find the way back to the world of ordinary consciousness. Note that in these cultures, the term "Drum Circle" would certainly not be used. Rather, the terms 'drumming ceremony" or "ceremonial drumming" would be more accurate. 

Medicine Wheel Drumming and Prayer Ceremony
This description is really not of a drum circle either, in the sense that the term is commonly used. It is a drumming ceremony that takes place in a circle, but very different in content and form than a drum circle (improvised community drumming jam). This type should probably be listed under shamanic or spiritual drumming and not under drum circles.

Practiced by various groups, and outlined step by step in the book, "Finding Sanctuary in Nature: Simple Ceremonies in the Native American Tradition for Healing Yourself and Others," by Jim PathFinder Ewing (Findhorn Press, Scotland, 2007), (page 147), "the medicine wheel drum circle prayer ceremony" recognizes the four directions—east, south, west, north—as spiritual Powers that can help balance and heal. The ceremony has four rounds, with drumming by all participants at the instruction of the leader allowing the energy of each direction in each round to come into the circle to facilitate prayers and healing. It has been described as "like a sweat lodge without the sweat" (page 148, Finding Sanctuary). Ewing held these ceremonies each month for seven years, as outlined in the book, in addition to shamanic drum circles, and at various sites from coast to coast in the United States since the late 1990s. 

Groups based on his example and the instructions outlined in the book have resulted in other groups forming worldwide. 

I have experienced a version of this one, first hand, at a local Native American Christian church. Their drum ceremony is very spiritual and uplifting. I was impressed. This one differs from the Shamanic one in that trance inducing is not part of the ceremony, instead, the drum is used to offer praise and prayer to God the Great Spirit and Creator.   

The Growth of Drum Circles

Commercial drum circle groups and companies exist in most countries to serve various markets. There is also a growing body of people working in places such as hospitals, prisons, and hospices using drumming as a form of recreational and supportive music making. Music therapists often use various forms of group drumming (including improvised drumming) in their work to reach therapeutic goals and objectives.

------------------------

Music Therapy Part One - Recovering Memory and Speech of Stroke Survivors

by Chuck Jones

 As you will see, this article has many interesting points and touches on results that we have actually seen, first hand, with our stroke survivor campers. I need to point out, though, that in order to get the results described in this research article, a board-certified music therapist needs to be involved. We have board certified music therapists who work with us at our camps. They are producing these very results with stroke survivors. 

For a music experience to be called music therapy, it has to include a board certified music therapist, a client, and music experienced within a therapeutic relationship. Music is used by other types of therapists, but they don't call it music therapy. Music can also be used by caregivers in many ways to help stimulate the healing of the brain, and the best results would be achieved by working with a board certified music therapist who can prescribe music for a therapeutic outcome. 

You can contact the American Music Therapy Association to find a music therapist near you or go to their website at:  musictherapy.org. 

Here is the American Music Therapy Association's definition of Music Therapy: "Music Therapy is the clinical and evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed an approved music therapy program." 

The following article originated on a blog hosted by an online site called X8-Drums (www.x8-drums.com) and posted by their blog moderator Kristen.

  

Music therapy is used widely for rehabilitation of patients that have had a severe stroke. A study out of Finland reported that incorporating music into standard stroke rehabilitation treatments helps improve recovery of speech and memory. The music had a more significant impact on recovery than the use of audio books or no additional stimuli at all. The study also showed that the music lightened the spirits of patients as well.

After six months of therapy, the music listeners' verbal memory improved by 60% and focused attention improved by 17%, much higher than the results noted in audio book listeners or patients with nothing. Furthermore, the music listeners were happier and less confused than members of the other groups. The research was carried out on adults who had suffered an ischaemic middle cerebral artery stroke with no prior history of neurological disorder.

Strokes occur when blood is unable to reach the brain, killing brain tissues.

This can cause disability in movement and cognition, as well as death.

Medical treatment includes medication to thin the blood that will prevent further clotting, and restrictions on the patient's diet will help to improve cholesterol levels. The stroke even causes weakness, loss of coordination, and pain. The aftermath of the event includes memory loss, confusion, depression, difficulty speaking, paralysis, and sensory loss.

While listening to music, the brain boosts alertness, mood and attention due to stimulation of the dopaminergic mesocorticolimbic system, which moderates feelings of pleasure and memory, among other emotions.

By stimulating this system, you trigger the wires for other parts of the brain through a neurological crossing effect. Doctors believe that the combination of music and lyrics leads to this cross over effect, which helps to recover losses in other parts of the brain.

Many therapists already use music as a tool. Singing songs can boost speech recovery in stroke patients. By putting words to a familiar song melody, the patient has an easier time of forming words and phrases. Rhythm and clapping, also used by therapists, aid in the recovery of movement and muscle control.

After a stroke, it's important to begin music therapy early, during the acute post-stroke stage. During this period, the brain undergoes many changes that relate to movement, memory and speech that can be augmented by stimulation. The largest benefit of musical therapy is that it fits in well with every day life. Music is everywhere, so with proper guidance you can treat yourself or your loved ones outside of the hospital, maintaining ongoing recovery and a routine of incorporating healthy brain stimulation.

Music can be a worthwhile therapeutic addition to a stroke patient's care, and is cheap and easy to provide. Patients may also respond to live performance music or by playing on simple instruments themselves. Experiment with recorded music, live music and present the patient with an instrument like a small djembe or shaker.

When selecting the type of music, choose something that is familiar to the patient. Playing something that they recognize will improve results of the therapy and improve memory development. Interesting enough, this study of music therapy on stroke patients showed that songs by Kenny Rogers delivered the most significant response from the patients. However, you should allow the patient to choose the music him or herself, or use music that you know the patient likes, as the familiarity of the music is frequently the key to memory retention. Selecting the type of music that stimulates the brain to craft thoughts is the technique used in music therapy to recover speech and recollection.

-------------

To view the original X8-Drum article go to:

http://www.x8drums.com/v/blog/2009/07/recovering-memory-and-speech-of-stroke.asp

-------------

Do you want to buy a Copier?

Chuck Hofvander is a stroke survivor and fellow camper. Here is one of many essays he wrote outlining his experiences. Some of those he has written deal with his life before his first stroke, some deal with life after. Chuck likes to write essays as therapy while recovering from his strokes. He has had two, his last one very recently after a bicycle accident.  This essay, although written after he had his first stroke, tells about a time before he had that stroke. 

Do you want to buy a Copier?
by Chuck Hofvander

What comes to your mind when someone says “I want a copy of…? “? What do they say next; Canon, HP, Toshiba? No Xerox! I worked for Xerox as a Document Expert; I had been the head of a document management area at CNA Insurance for two years, but I didn’t know anything about printing except I knew about printing was that it came out of a printer.

Our focus was insurance because of my illustrious career. Our mission was to consult on projects that ended in printing. I got the job after an interview in Rochester NY with Brian S and his staff of document experts; none of whom had any insurance experience except as it was required to buy a car.

After consulting on a printing project in Buffalo NY the VP announced that since his whole group had worked so hard as a reward he was going to take us all to Lake Placid. So early one morning me and a colleague flew from Chicago to Albany. In Albany we rented car, picked up a woman; I know what you’re thinking about the woman but she worked with us, and then traveled to Lake Placid; really it’s on Mirror Lake which is a stone's throw from Lake Placid if you're a very good stone-thrower". Just thought you’d like to know

There the VP had arranged a half hour meeting in the morning at the Inn and then unleashed us Xeriod’s on the un-suspecting populace of Lake Placid..

Our insurance group got together to plan our day and we agreed on our plan of attack. We’d drive to the Bob sled run and ski jumping site. Followed by a drive back to Lake Placid to go to the ice hockey arena, relax at the hotel, go to a party arranged by the VP and then finally to sleep. Little did we know there was a really amateur hockey in store for us.

We drove to the Bob Sled run and there three of us backed out using excuses such as "too tall" or "too fat" or "no change of underwear in case we peed our pants,"’ I was too tall to ride in the sled, thank God; and too scared. But a few brave souls were thrilled to ride. Among them was Mister K.

Mister K was born a natural-born leader of other men. He was the type of man that if you wanted something done he asked somebody else to do it. If you asked him a question and if he didn’t know the answer, Mister K would make one up. He was that type of man. He was my hero.

I looked forward to him being stuffed into a sled.

We non-riders went to a club and drank coffee and the others went to the top of the course. There the riders got their turn, started their run, and put their heads and limbs down. They were scared but not Mister K.  

Mister K was the last person in the sled, he stood straight up until the first turn then he realized he should be scared. His first instinct was to jump out of the sled, bad idea. Next he thought of dragging his feet behind the sled, worse idea. In the end he along with the riders sat, scared, crouching in fear until the end of the run.

When the riders came to join us in the coffee shop they were all shaken except Mister K he was petrified.

After Misters K’s recovery we went to the jump. Do you know how high  a ski jump is at the top of the jump, well I’ll tell you it’s 295 feet; just to compare the Great Pyramid of Gaza is 481 feet. We went to the top in a glass enclosed elevator. We like a bunch of frigid robots, got out of the elevator and went outside to face a howling wind and cold.

At the top the angle is very steep as calculated by the following:

Calculate the vertical height h from the starting gate to the bottom of the ramp. The skiers push off hard with their ski poles at the start. They typically have a speed of 2.0 m/s as they reach the gate. The skiers should have a speed of no more than 30.0 m/s when they reach the bottom of the ramp. You determine that for a 80.0 kg skier with good form, friction and air resistance will do total work of magnitude 4000 J on him during his run down the slope.

If you can’t understand that I’ll translate: its [freaking] high!

The others weren’t brave enough to face the frigid temperature and the gale-force wind but yours truly was. They went inside but I stood firm, I took off my shirt and dared the elements to defeat me! Elements one Chuck zero! (Come on, if you believe that I’ve got a copier you might be interested in).

After we thawed out we went back to Lake Placid and went to the hockey arena where in the 1980 Olympics a bunch of amateurs U.S. beat a pro level team from the Soviet Union. There nothing special happened except me crying like a baby. It brought back memories of my wife and I sitting in my parent’s living room watching the victory of the U.S. beat the Soviet Union. Fooled ya, we were at my parents place but I didn’t cry and we didn’t watch the game.

There was nothing unusual at the arena except the usual souvenirs and nothing special at the hotel. Then came the party.   

The party was boring, we sat around like muffins in a pan waiting to be put into the oven then Mister K appeared.  He was dressed in a white vest and pants and a black shirt; think John Travolta in Saturday Night Fever, and a hockey helmet.

He needed the hockey because Mister K had been putting up Christmas lights on the gutters of his home and fell off the ladder. His solution was to wear a hockey helmet to prevent further damage to his cranium, if that was possible.

When Mister K appeared the party came to life. He jumped onto the dance floor and, well he was not Travolta. He jumped, wiggled, drooled like a wild man on the dance floor! People were scared of him. The hotel management was about to have him put away when he collapsed and we took him back to his room. I went back to my room and went to sleep.  

There I dreamed that a beautiful blond woman came into my room, got undressed, climbed into my bed, crawled up next to me, began hugging me and said “Do you want to fool around.” Of course I said yes but then gorgeous blond said “Not before you do you’re chores, get to it!” It was then Brian walked into the room, saw me hugging the pillow and said “what do you think you are doing, I’ve arranged a hockey game with the VP of the financial group and it starts in 10 minutes”.   

Yikes what a nightmare! But it wasn’t a nightmare it was two o’clock in the morning, I’m hung over and tried. I got up, put on whatever clothes I thought would be good for a hockey game at 2:00 o’clock in the morning and joined other sleepy and drunk Xerox’ers. The hotel didn’t have an indoor rink so we went outside to Mirror Lake where it was -8 below zero.

Brian is in an amateur hockey league and knows what to do with a puck but none of us others did.  Brian tried to organize an offense and defense but we were hopeless. I couldn’t move backwards, others couldn’t get on skates, some couldn’t get moving once they had their skates on, some skated forward but couldn’t stop, and some just fell down!

But the other team was worse; they went outside, stood there observing and went back inside. So we played with ourselves for about a half hour, we had a lot of staying power. But eventually it was Brian who gave up just when we were getting the hang of this hockey thing.

In the morning I and Mister K left Lake Placid; he behaved.

This experience left me with some things I’ll never forget Lake Placid is beautiful but it’s on  Mirror Lake,  Ski jumping is hazardous to your health; Ski jumpers have to be crazy, I’m too tall for most of anything except basketball, I’ll cry at anything,  I can’t skate, I’m grateful that Mister K is my friend but you always have to be on the lookout for his drooling.

Good night Chet. Good night David. 

Please feel free to post any comments or questions by clicking on the red word Comment following this article. If you have any questions or comments about anything that you would like to share with us please feel free to do so on any of our articles. Don't worry about being off topic. Any question or comment is welcome on any of the articles' comments section.

The Cost of a Stroke

by Marylee Nunley, Executive Director

Retreat & Refresh Stroke Camp

Anyone who has had life interrupted by a stroke likely knows that it comes with a price. Sometimes a very high “price”. There are many things in life that pose challenges for us. Among the top things on that list is when personal finances take a hit. Stroke is one of those things that arrives quite without warning, interrupting life as you’ve known it and causing a complete re-frame of “normal”. Of course, care for the stroke survivor is primary at onset, but it doesn’t take long before the financial challenges start to appear. This is especially true if the stroke occurs while the patient is still working. Some employers have short and long term disability insurance and often folks have taken out their own policies, but the vast majority of people suffering a stroke while still working will take an enormous financial hit.

A recent article from Stroke Smart Magazine provides some good information about where the money goes with relationship to stroke. It can be mind boggling to see the actual cost incurred at a time you are already vulnerable. To see the entire article click on the pie chart.






Need a Budget Worksheet?

I have included a link below called "Family Budget Worksheet" that will take you to an online site that you can use to set up a personal budget to help you see how your finances can be managed.  Maybe you already have a budget set up, but if not, then you might find this tool useful. It is an easy-to-use printable budget worksheet. This site also has several other different worksheets you can start out with, or you can even create your own. All of these worksheets are fully customizable. The "Family Budget Worksheet" that the link below will take you to is ready for you to use right now. Click here to go to ->> Family Budget Worksheet

If you decide use the worksheet, make sure you "bookmark" it or make it a "favorite" in your browser so that you can easily return to it later. The site asks you to register for free so you might want to do that also so that you don't lose your work and have to re-enter everything.   

What About Government Financial Assistance? 

The Social Security Administration (SSA) has two programs that provide financial assistance for those who are unable to work.

The first is Supplemental Security Income (SSI), a federal assistance program to help seniors and the disabled who have little or no income on their own. This program is not funded by Social Security taxes but by general tax revenues.  The SSI program provides recipients with money for everyday needs such as clothing, food, and shelter. Follow this link to Social Security's SSI page ->>  Supplemental Security Income Home Page

The second program is called Social Security Disability Insurance (SSDI). SSDI is funded through payroll taxes and provides supplemental income to people who are physically disabled and their eligible family members. Because SSDI is funded by Social Security taxes, recipients must qualify by showing the government they’ve been working for a certain amount of time and have contributed to Social Security taxes over the years. Follow this link to Social Security's SSDI page ->> Qualify for SSDI Benefits

There are two books that we have found to be very helpful for those who are seeking this avenue for financial assistance. They are:


One is "Nolo’s Guide to Social Security Disability: Getting & Keeping Your Benefits" by David A. Morton III, M.D. This book may be found locally at your nearest book store or online. Call your local book store and ask if they have it in stock. For online searches, use the book title and you'll get several sites with offers ranging from $11 to $40 depending on if the media is paperback or e-Book. 
 
 
The other is "How To Get SSI and Social Security Disability: An insider’s Step by Step Guide" by Mike Davis. Again, do a search on the whole title and you'll get a list of site to order from. For this book, you can click on the image at the right and it will take you to Amazon.com where the book is listed at around $10.


Here’s hoping this article will be helpful to anyone dealing with the effects of stroke in the early stages. As time goes on and life settles down, you may want to consider the job of applying for long-term disability.